Getting All Caught Up!

That afternoon her fever spike, again. Fortunately, we needed to run up to the hospital pharmacy to pick up one of her prescriptions…so we stopped by the Clinic to see Dawn. Dr. Hugge was already gone for the day, but Dr. Ferguson took a look at her and decided that she had yet another ear infection. So we filled another prescription and started some antibiotics. Her fever stayed gone! We had a great New Years together as a family. That was nice!

Friday, Taylor and I went to the hospital for her EEG. She was not a fan of that at all. She didn’t mind the actual test itself, probably due to the fact that she slept for most of it, but she hated getting ready for the test. It took about a half an hour for them to make all the measurements and markings to get the things in the right spots, then another 10 to get them glued and taped into place. Some of you may recall…Taylor has developed quite a hatred for things that stick to her….the whole pulling them off bothers her extra sensitive skin! She did great. The test would not be read until Monday…so we would get the results sometime next week.

Saturday, Taylor had another one of her episodes…this time lasting close to an hour and half. Thank goodness for Dawn and her willingness to let me call her outside the clinic. That was awesome! To be able to talk to someone that knows the history and medically what is going on….it is such a relief as her parent.

Sunday and Monday were pretty calm. Tuesday morning, Dr. Hugge called me on my cell phone with the results from Taylor’s EEG. Not that I don’t enjoy a conversation with Dr. Hugge, however, my initial thought was “Oh crud, that can’t be good for the doctor to call me, himself”. The EEG result came back. Dr. Gellar saw some areas were the brainwaves had some abnormal spiking. This would not necessarily mean seizure activity but indicates what could or would turn into seizure activity. So something new…AWESOME! They are going to start her on an anti-seizure medication when we go in Thursday for her Clinic visit.

We go in tomorrow for her monthly Clinic visit. She is not due for a spinal tap, so we should have just been going in for a simple chemo push in her port. Due to her extremely low antibody count, she is also getting an antibody transfusion. That will take several hours. We will also talk gameplan, as far as her Methotrexate, Anti-seizure medication and so forth.

I will keep you posted.

Thank you for all of your thoughts, prayers, and Twinkles!
Lindsay

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