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So everything has been crazy-busy here with us. We have been enjoying the last several days of warmer weather! We have been able to enjoy the outdoors a lot over the last week! The girls have been busy playing in the backyard, getting our veggie garden ready, playing ponies on the swing, chalk, building sandcastles in the sand that spilled out of the basketball hoop that fell down in a windstorm, and riding there bikes up and down the sidewalk in our backyard!

As far as Taylor is concerned.... Continue reading "Spring is here!" »

How would you like to take part in the world’s largest fundraising event for childhood cancer research? On behalf of the St. Baldrick’s Foundation, Taylor and I are seeking your participation in an event that could save a child’s life. What began as a challenge among friends has grown into the world’s largest fundraising event for childhood cancer.

Because these youngsters typically undergo treatment that causes their hair to fall out (Taylor has 2 times so far), volunteers are recruited to shave their heads in public as a bold act of solidarity. These volunteers receive pledges of financial support from their friends and family. In turn, their generous donations help fund life-saving childhood cancer research.

Since its inception in 2000, St. Baldrick’s…
Continue reading "Be one of Bella's Baldies!!!" »

So…Taylor’s last clinic visit on the 8th went well. Her counts are not still so high like they had been the last several visits. So that is good. Her Neutrophil Count during Maintenance should be between 500 and 1500. Her’s was 600! A little on the lower side…but I like that better then 5000 or more. Sammy was there for her monthly visit as well so Taylor was very excited to have someone to play with. Taylor was also a little excited because it was Sammy’s time for a Spinal Tap and not Taylor’s. The month before it was the other way around. Now onto the Neuro- talk. Continue reading "My little baby is 6!!!" »

Okay so for all of you that had the opportunity to catch up with yesterday’s blog entry…here are the rest of the developments over the holidays. After the MRI showed the Leukoencephalopathy, Dr. Hugge decided to hold her oral Methrotrexate for that current week pending a decision on treatment moving forward. He discussed with the Neurologist doing an EEG to get a baseline for her brainwaves. That way if they needed to run another one in the future, they would have a good baseline to compare it. The EEG was scheduled for Friday.

Tuesday night Taylor spiked a fever and it went back down. Wednesday morning she was feeling overall…YUCKY! I was afraid we would be spending another New Years Eve in the hospital. Continue reading "Getting All Caught Up!" »

Wow…what a holiday season for us! Christmas was great! We are very blessed to have such a large extended family to spend the holidays and such wonderful people stretching across the globe to keep us in their prayers! Believe me you are all cherished and appreciated! Last year on December 26th, Taylor was admitted into the hospital to start her High Dose Methotrexate. How nice it was to not have to do that this year! This year it was all about the one year mark. December 26th of 2009 will be her LAST DAY of chemotherapy! There is a light and it is within 1 years reach!

The week after Christmas, this past week, was a little much! Almost brought back feeling of last year, chaos and upset! We had trips to the clinic/hospital 5 out of 7 days last week and part of an additional day was spent calling Taylor’s Clinic nurse, Dawn and the doctor on-call for the weekend...
Continue reading "Calm Christmas...Crazy New ... »